Thursday, January 13, 2011

After the craziness...

We left off where CPS closed the case.  Now we had to start focusing on Eric and his illness.  There is still so much unknown at this time.  How did this happen to my little boy?  Was it my husband and I together that made him have these health problems?  So many questions in my mind.  Eric started seeing a neurologist immediately after that first seizure.  This Dr was THE ONLY Neurologist in the Valley.  His bedside manner sucked.  He actually told me he was late because he was playing golf, had to pick up his mercedes and check his stocks.  He never did much for Eric.  Eric was put on medication to try to control the seizures in June 2007.  He was now on Keppra.  By that time he had about 7 grand mal seizures.  So scary!  We had been telling the Neurologist the whole time about him still having seizures and what we called "lethergic moments".  Eric had these episodes that sometimes lasted 20-30 min.  He was kind of responsive but he just couldn't move his body.  He would cry and whine until finally it would end.  This would happen 3 times a week or so.  We would tell the Dr but he never really did anything.  Had his heart tested, ears, eyes.  We even had some genetic testing done at UCLA.  Every therapist that we came accross was trying to get us to go to another Neurologist but because of the insurance company it took forever.  Finally after asking for referrals for another Dr from Erics pediatrician and trying to get in to UCLA....we finally saw another Neurologist.   This time at UCLA.  He did a 24 hr EEG and found out what type of seizures Eric was having.  Paralizing seizures...hence why he has those "lethargic moments".   They put Eric on a 2nd medication about 6 months ago and he has been seizure free for 5 months now.

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